Information

Understanding Autism and Getting Support

If you’re at the beginning of this journey, it can feel overwhelming. You might be unsure where to start, what steps to take, or who to turn to. NeuroNest is here to help you take things one step at a time – at your own pace.

Where would you like to start?  

Understanding Autism

You might be here because something doesn’t quite feel typical in your child’s development. You may have noticed differences in communication, behaviour, play, or how your child interacts with the world around them. It’s very common for parents to question whether they’re overthinking things – but if you’ve noticed consistent differences, it’s always okay to explore them further. It’s okay to have questions – and it’s okay not to have answers yet.

Autism (or Autism Spectrum Disorder) is a neurodevelopmental difference. This means it relates to how the brain develops and processes information. It can affect communication, social interaction, sensory experiences, and behaviour – but it looks different in every child. Autism is described as a spectrum because it affects each person in a different way. Some individuals may need significant support in daily life, while others may be more independent. Autism is not an illness or something that needs to be ‘fixed’ – it is a different way of experiencing and understanding the world.

Autism is genetic – this means you are born autistic, you don’t become autistic. Most autistic people are autistic because of genes they inherit from their parents, which is why autism can run in families. However, parents cannot control the genes they pass on and there is nothing a parent does that causes their child to be autistic.

Genetics are not as simple as having one particular gene that causes autism. Thousands of genes can contribute to someone being autistic, and in some cases, other factors may also play a role alongside genetic factors. However, even though autism is genetic, there isn’t a genetic test that can tell us whether a child will be autistic, and researchers are still learning about how these different genes and factors come together.

Every child is different, but some early differences parents may notice include:

  • Differences in speech or language development
  • Limited eye contact or response to name
  • Preferring to play alone or differently from peers
  • Repetitive movements or behaviours
  • Strong need for routine or difficulty with change
  • Sensitivity to sounds, textures, or environments
  • Intense interests in specific topics or activities

These differences can appear in early childhood, though they may be more noticeable at certain stages.

Autism is a spectrum, and no two autistic children will look or experience things in exactly the same way. One child may communicate using spoken language, while another may communicate in different ways. Some children may seek sensory input, while others may avoid it. A child’s needs can also change depending on their environment, energy levels, and what is happening around them. There is no single way to be autistic, and a child does not need to show every commonly recognised trait to be autistic.

Strengths, Interests, and Differences
Autistic children have their own individual strengths, interests, and ways of experiencing the world. These might include creativity, memory, problem-solving, attention to detail, a deep knowledge of particular interests, or a strong sense of fairness. Not every autistic child will have the same strengths, and strengths can sometimes be overlooked when attention is focused mainly on areas where a child needs support. An autistic child’s strengths and challenges can exist alongside each other, and being autistic does not mean having a particular set of abilities or interests. Getting to know what your child enjoys and what comes naturally to them can be an important part of understanding and supporting them.

Sensory Differences
Autistic children may experience sensory information differently. Sounds, lights, textures, smells, tastes, movement, or the feeling of clothing can sometimes feel much more intense, while other sensations may not feel strong enough. A child may seek out certain sensory experiences, avoid others, or experience a mixture of both. Sensory needs can also change depending on tiredness, stress, surroundings, and how much a child has already had to process. Understanding sensory differences can help explain why everyday environments or activities sometimes feel overwhelming, or why a child seeks particular movements, sounds, or textures.

Communication Differences
Communication is much broader than spoken words. Autistic children may communicate through speech, gestures, facial expressions, sounds, pointing, pictures, signs, devices, or other forms of communication. Some children may use lots of spoken language but still find certain aspects of communication difficult, while others may have limited or no spoken language. The important thing is giving each child ways to communicate that work for them, recognising all forms of communication, and never forcing communication or withholding something they need or want in order to make them communicate.

When Speech Looks Different
There can be many reasons for differences in speech, including differences in language development and the way the brain plans, coordinates, and produces the movements needed for speech. For some children, speaking may be particularly difficult because of underlying neurological or motor-speech differences. It is important to understand that this is not simply a matter of a child choosing not to speak or not trying hard enough.

We cannot always predict how a child’s spoken language will develop, which is why communication should never be put on hold while waiting for speech. Spoken language is only one way to communicate. What matters most is giving each child reliable ways to express their wants, needs, feelings, thoughts, and choices, and to connect with the people around them. Supporting other forms of communication does not mean giving up on speech. If speech develops, it can be supported alongside other forms of communication. If a child remains nonspeaking, they still deserve reliable ways to communicate and be understood.

Masking
Some autistic children may mask. This means hiding, suppressing, or compensating for aspects of their natural way of communicating and responding in order to fit in or meet the expectations around them. This can include copying other children, watching and imitating how others behave, suppressing stimming, or carefully monitoring how they speak, move, or interact. Masking can be conscious or unconscious, and it can take a great deal of energy. A child may appear to cope well at school or in social situations, but become exhausted or overwhelmed afterwards, sometimes leading to meltdowns, shutdowns, or a strong need to withdraw once they are somewhere they feel safe. Not every autistic child masks, and it can look different from child to child. Recognising that what we see on the outside may not always reflect how much effort a child is using to cope can help us better understand and support them.

Meltdowns & Shutdowns
When a child becomes overwhelmed, their nervous system may respond in ways that can look very different from one child to another. A meltdown is an intense response to being overwhelmed and may involve crying, shouting, physical movement, distress, or difficulty communicating. A shutdown can be a quieter response, where a child may become withdrawn, very still, unable to speak or respond, or need to retreat from what is happening around them. These responses are not deliberate attempts to be ‘difficult’. They are signs that a child is struggling to cope with what they are experiencing in that moment. Sensory overload, communication difficulties, changes in routine, demands, social situations, tiredness, and other sources of stress can all contribute. Understanding what may be overwhelming a child, reducing demands where possible, and giving them time and space to recover can be more helpful than focusing on the behaviour itself.

What To Do If You Think Your Child Might Have Autism

As a parent or caregiver, you know your child best. If something doesn’t feel quite right, it’s okay to seek advice, ask questions, and explore supports – even before a diagnosis.

This can feel like an uncertain time – but you are not alone. Many families begin exactly where you are now, taking one small step forward at a time.

Not sure where to start? Here’s a simple overview of the journey:
A clean NeuroNest assessment pathway infographic on a light cream background, showing the steps and pathways involved in seeking an autism assessment, with all numbered stages aligned consistently and the NeuroNest logo at the bottom.

Below, we explain each of these steps in more detail.

Start by Speaking with a Professional

Reach out to someone like your GP, a public health nurse (PHN), a teacher at your child’s school, or another health/education professional your child already sees. Bring a list of your observations – what behaviours, struggles, or strengths make you concerned (communication difficulties, social or sensory issues, patterns, routines, etc). This helps frame your concerns clearly. They will guide you on the best next step, usually this is a CDNT Referral.

Assessment Process

If you are concerned about your child’s development, there are pathways in Ireland to seek an autism assessment. The process can vary, but understanding the steps can make it feel more manageable. It’s important to keep in mind that while there are official timelines in place, many families experience longer waiting periods – unfortunately, this is a common part of the process.

The CDNT support children up to age 18 who have complex needs. They work with families and children who need a lot of day-to-day support due to an illness, disability, or sensory impairment.

Your child does not need a diagnosis or an assessment of need report to access CDNT services, but they do need a referral. You can ask your GP or Public Health Nurse for a referral to a CDNT. You can also speak with your child’s preschool or school. In some cases, parents/guardians can submit the referral themselves.

Healthcare professionals will assess referral and decide if a CDNT or another service is best to meet your child’s needs. They will make this decision based on the information you provide. The CDNT Referral is focused on accessing services.

CDNTs are made up of health and social care professionals from different disciplines, including but not limited to: family support workers, specialised therapists, early years practitioners, dieticians, psychologists, and behaviour specialists. The team members work together to provide therapeutic services and supports to children, and keep each other up to date with progress and changing needs.

CDNTs follow a family-centred practice approach, which means that they work closely with you and your family to work out how best to support you. Together, your family and a CDNT will create a support plan called an Individual Family Support Plan (IFSP). This plan sets out the goals you wish to work on for your child.

Required Forms: Children’s Services Referral Form, plus an Additional Information Form appropriate to your child’s age category (0-12 months, 1–3 years, 3–6 years, etc).

To Note: Wait times can vary significantly depending on your area.

You can apply for a legal evaluation under the Disability Act 2005 by completing an Assessment of Need (AON) application form. This is a legal statement of whether or not your child has a disability. The AON can be completed by a parent or guardian. This is a formal process to identify your child’s health, disability supports, and services needs – regardless of diagnosis. The AON Application is focused on identifying needs.

The assessment officer decides if the Assessment of Need will be carried out by a team or by a single healthcare professional. The AON assessment is completed using the Standards for the Assessment of Need.

How to Apply: Download the AON Application Form (from your local health office or online) and post or submit it to your local Health Service Executive (HSE) Assessment Officer.

Important: Include as much detail as possible about your child: development history, behaviour, concerns, any previous reports or observations from school or health professionals. Signed parental consent is required.

To Note: The HSE is legally required to start the assessment within 3 months and complete it within 6 months. However, in practice, timelines are not always met.

Some families choose to access a private assessment as they usually have a shorter waitlist, however this is not always an option for everyone due to costs. Similarly to the public route, private assessments will involve private psychologists or multidisciplinary teams.

Things To Consider: Ensure the professional is appropriately qualified and check to make sure the report will be accepted by schools/HSE services.

When The Assessment Begins
  • 1. Confirmation Letter

    After submitting an application, the HSE should send you a confirmation letter (often within a few weeks).

  • 2. Referral Timeline

    Your referral needs to be reviewed and a decision made on which services meet the needs described. Wait periods depend on your area, and delays can occur for many reasons (such as staffing issues). If you have been waiting for some time, you can contact your CDNT for confirmation on your referral and they may be able to give an estimate of when your child will be seen.

  • 3. Assessment & Report

    Once the assessment begins, it is intended to be completed and a report provided. Timelines can vary, and some families may experience long waiting periods.

    The assessment team usually includes multiple professionals (e.g. psychologists, speech & language therapists, occupational therapists) and may involve questionnaires, observing your child, and if your child currently attends crèche/preschool/school – school reports, and maybe even a school visit.

  • 4. Service Statement

    If your child is found to have needs, the HSE will issue a Service Statement. This document outlines the supports and services your child requires, based on the assessment findings. It is intended to guide what should be provided. In practice, access to services can depend on availability in your area, and some supports may not be in place straight away.

Preparing for an Assessment

Waiting for an assessment can feel like a long time, and you might be wondering if there’s anything you should be doing in the meantime.

It can be helpful to keep a note of things you’ve noticed about your child and the situations they find easy or difficult. You might notice patterns around communication, social interaction, sensory experiences, routines, or changes.

You can also gather any relevant information from preschool, school, or other professionals who know your child. If you have questions or concerns you’d like answered during the assessment, writing them down beforehand can help too.

You don’t need to have everything prepared perfectly – the assessment team will guide you through the process. These notes can simply help you build a clearer picture of your child’s individual experiences and needs.

Understanding Your Child’s Assessment Report

Once you’ve received your child’s assessment report, it can feel like there’s a lot of information to take in. You don’t need to understand everything straight away. As well as the outcome of the assessment, the report should help build a picture of your child’s individual strengths, differences, and support needs.

Pay particular attention to any recommendations made by the assessment team. These may help you understand what support could be useful and give you a starting point when thinking about education, therapies, or other services.

You can always come back to the report later – there’s no need to absorb everything at once.

What Happens Next?

Whether you’re waiting for an assessment, going through the process, or wondering what support you can access next, it’s completely normal to feel unsure. There is no single path forward and you don’t need to do everything at once.

While you wait – which can unfortunately take a long time – you don’t have to do nothing. You can still access supports and health services even before a diagnosis. This can be done via your GP, Public Health Nurse, school, or other local services. You can also reach out to national support organisations like AsIAm. They offer advice, resources, and can help families navigate the process while they wait.

Your child is also entitled to support within the education system. This may include: AIM (Access and Inclusion Model) supports in preschool, special education teaching supports in primary school, special classes or special schools (if appropriate). You may also work with: SENOs (Special Educational Needs Organisers) before receiving an official diagnosis – they will assist you in accessing additional teaching support for a child in a mainstream school. In certain circumstances, you may be able to avail of the Home Tuition Grant.

Some families may be eligible for certain financial supports. These can help reduce some of the financial pressure. These include but are not limited to: Medical Card, GP Visit Card, Domiciliary Care Allowance, Carer’s Support Grant, Incapacitated Child Tax Credit, Carer’s Allowance/Benefit.

Even before accessing formal supports, there are small ways to make everyday situations feel easier.

The JAM Card is a simple way to let others know that you need ‘Just A Minute’ of patience and support.

The Hidden Disabilities Sunflower is a discreet way to share that you have a disability or condition that may not be immediately apparent, and that you may need a helping hand, understanding, or more time – whether that be in work, in shops, or on public transport.

Small, consistent supports at home can make a big difference over time. This includes things like: creating predictable routines; supporting communication (visuals – can be found on our resource page, simple language); preparing for transitions; understanding sensory needs.

It is important to be kind and patient with yourself as you navigate this journey. You don’t need to have all the answers – learning as you go is enough. It’s also important that you keep sharing things with professionals: your own observations, teachers’ feedback, anything that helps build the case for support.

If you have received a diagnosis, click here to see what you can do next.

A Message of Support:

Finally – and perhaps most importantly – try to approach this with openness, patience, and self-compassion. It’s very common for parents to experience a mix of emotions: relief at having an explanation, alongside grief, fear, or sadness about the challenges their child may face. Many parents describe feeling isolated, unsure who to talk to, or worried about being judged. All of these feelings are completely valid. It takes time to adjust to a new understanding of your child – and of the future you had imagined.

If your child does receive an autism diagnosis, this is not something to fix. Instead, it can be a way of understanding their strengths, interests, and needs more clearly. Autism reflects a different way of experiencing the world, with both challenges and unique strengths. Understanding this early can help you support your child in building confidence, embracing who they are, and accessing supports that truly meet their needs – without trying to change them.

You don’t need to have all the answers right away. What matters most is your relationship: seeing your child clearly, supporting them with care, and knowing that you are not alone. NeuroNest is here to support you – every step of the way.

Next Steps

See What Supports Are Available
Connect With Others